Debunking common Alzheimer’s myths

Posted in Blog

We examine the false and misleading stories about Alzheimer’s that fill the news and distort the public's perception.

The prevalence of myths surrounding Alzheimer’s disease can sometimes be tricky to navigate.

These myths have arisen for several reasons - the disease's complexity, the fast progress in science and research, and even the fear of the disease itself. And although wading through the masses of information can be difficult, it is important to remember what is true and what is not.

It is important to rely on credible sources and the latest research to understand Alzheimer’s disease. Krysalis recently provided an update on the latest findings, outlining new potentially impactful drugs and additional information, here.

Debunking the myths…

Myth #1: “Aren’t Alzheimer’s disease and dementia the same thing?”

Truth: No, they are not. Dementia is a broad term that describes a set of symptoms like memory loss. Alzheimer's is a specific condition that causes dementia. While they share the same symptoms, calling them the same thing is a generalisation.

Myth #2: “All old people experience memory loss – it’s a part of old age!”

Truth: Wrong! Occasional memory problems are normal as we age, but Alzheimer’s involves serious memory loss because of brain cells malfunctioning and dying.

Alzheimer’s disease is also not just specific to older adults, it can also occur in younger individuals, known as early-onset Alzheimer’s. While uncommon, it can occur even in individuals in their thirties.

Myth #3: “My dad had Alzheimer’s, so I’ll develop it too.”

Truth: While genetics play a role in developing Alzheimer’s, having a parent with the disease does not guarantee that you will also develop it too. Fifty percent of cases have a genetic link, yet environmental and lifestyle factors also influence risk.

We know from research and statistics that dementia is increasing within the population and more and more people will be affected by it, be they the people with the diagnosis or their families.

Phyllis Logan, actress and Dementia UK ambassador (1)

Myth #4: “There are treatments that can stop Alzheimer’s altogether.”

Truth: Unfortunately, that is wrong. Currently, there is no cure for Alzheimer’s, but there are treatments that can help manage symptoms, slow the progression of the disease, and improve quality of life for those affected.

Myth #5: “Those with Alzheimer’s can’t live by themselves!”

Truth: That is not entirely correct. While Alzheimer’s is a progressive disease, the level of independence will change over time and constant assessment is important throughout.

Those who are in the initial stages of the disease may have no issue living independently. There are solutions and aids, such as occupational therapy, which can help individuals maintain their self-reliance.

Where do the rumours come from?

Why is it that there are many rumours and myths surrounding dementia and Alzheimer’s? Is it lack of education? Or a combination of confusions?

There is no straightforward answer, but rather than labelling individuals who spread misconceptions as adversaries, it is crucial to understand the origins of their misunderstandings.

These kinds of barriers don’t just sort themselves out – we need to focus on them to break them down.

Danny Ratnaike at Alzheimer’s Society, on sharing factual Alzheimer’s stories (2)

A lack of understanding can significantly contribute to the spread of misinformation.

Many individuals do not know the difference between dementia and Alzheimer’s disease, which can lead to confusion and the spreading of incorrect information through word of mouth.

The distinction between the two is crucial yet often misunderstood, which can cause issues when people share information without a clear understanding of these terms.

Fear is also another major factor contributing to the spread of myths and misinformation.

As people age, many worry about the possibility of being affected by Alzheimer’s disease and the assumed loss of independence.

This fear can be overwhelming and, when combined with the sharing of information through word of mouth, can create a stigma around the condition.

This stigma can be so powerful that many individuals prefer to avoid discussing the topic altogether to escape the associated fear and anxiety.

Evading discussions continues to spread the misinformation and fear regarding Alzheimer’s disease. However, by raising awareness and increasing understanding - such as with World Alzheimer’s Month - we can dispel these myths and provide better support for those with the condition, and the families affected by it.

Having transparent and evidence-based discussions is vital in dispelling these myths and alleviating concerns.

The support we give

Occupational therapy can be an amazing tool to help transform the lives of those with Alzheimer’s. Here at Krysalis, we understand the importance of providing practical, evidence-based interventions and information to support the individual in need and educate those around them.

What do Krysalis Occupational Therapists do to prevent misinformation?

They can provide education to caregivers and families about Alzheimer’s, the progression of the disease, and effective management strategies. This educates individuals on the condition and prevents them from believing the myths spread

They assess and modify living environments to enhance safety and functionality, debunking the myth that individuals with Alzheimer’s cannot be independent

They focus on engaging individuals in meaningful activities that improve their well-being. This proves that Alzheimer’s patients can enjoy a good quality of life, despite the fears that the stigma causes

They use techniques to manage and reduce symptoms, removing the idea that the issues that come with Alzheimer’s are inevitable and uncontrollable

Lastly, we would like to thank and congratulate Alzheimer’s Disease International for establishing World Alzheimer’s Month and for continuing to raise awareness and challenge the stigma that surrounds the condition.